|Jenna's right hand, pre-transplant. Xanthomas galore!|
She was evaluated for liver transplant at Cincinnati Children's when she was very little, but a lot of kids with Alagille Syndrome don't need transplant so we were initially hopeful that she would be okay with just medicine. Alas, it was not to be. She was followed closely by the liver care center and cardiology departments at Children's, and by the time she was about three, it was apparent that she would need a transplant if she was going to have any hope of a normal life.
On March 20, 2005, we got the phone call that a liver had been found for Jenna. That next evening, the
|Jenna, very happy 16 days post-transplant|
Jenna continues to thrive and she still sees several doctors at Children's. In some cases, we have chosen to have her medical care handled by Cincinnati Children's even though it's about 3 hours away from our home. We have literally driven to Cincy for a single appointment that lasted less than a half hour before. In addition to her liver transplant, she's had open-heart surgery at Children's and a couple of heart caths. We have a few good hospitals much closer to us here in Huntington, WV, but nothing compares to the level of care and expertise we've found at Cincinnati Children's Hospital Medical Center.
|Jenna today, happy and healthy|
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